INoEA 2025 7th International Conference on Esophageal Atresia & 11th International PAAFIS Symposium & Aerodigestive Society Meeting

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Poster - 27

Physical activity enjoyment and physical self-concept positivity among teenagers with esophageal atresia: a comparative survey

TT König*, L Frankenbach**, A Holler***, J Brendel*, C Oetzmann von Sochaczewski****, L Wessel*****, A Widenmann******, OJ Muensterer***, C Niessner*******
*Department of Pediatric Surgery, Hanover Medical School, Germany
**Department of Pediatric Surgery, University Medical Center Mainz, Germany
***Department of Pediatric Surgery, Dr. von Hauner Children´s Hospital, LMU Hospital Munich
****Department of Surgery, Division of Pediatric Surgery, University Hospital Bonn, Germany
*****Department of Pediatric Surgery, University Hospital Mannheim, Germany
******KEKS e.V., Stuttgart
*******Institute of Sports and Sports Science (IfSS), Karlsruhe Institute of Technology, Germany

Purpose

In the past, our study group showed that esophageal atresia (EA) patients, especially females, are less physically active than healthy peers. With age, the gap widens even further. In this subgroup analysis we further explore possible underlying reasons.

Method

A survey was performed among EA patients of the participating centers and members of KEKS e.V. (a national support group) In this subgroup analysis, only patients aged 11-17 years without congenital heart disease were included. Physical self-concept (subjective strength, endurance, athleticism, flexibility, speed, coordination) and enjoyment of physical activity were assed using standardized and validated instruments (PSK 36-144 points; PACES, 16-80 points). Patients were matched for gender and age with healthy controls (Motorik-Modul study n=6233). Descriptive analysis and Mann-Whitney-U test were performed.

Results

Out of 104 EA patients, 28 (14 male, 14 female, median age 13,5 years) were included and matched to 140 controls. Most were born with Gross type C (n=23) or A (n=3) esophageal atresia, and five had thoracoscopic repair. The median PSK score in EA was 104 (male 106, female 93, p=0.25), and 105 in controls. Of all dimensions, median scores for endurance (EA 2.4, controls 2.7, p=0.03) and athleticism (EA 2,8, controls 3.0, p=0.02) were significantly lower in EA patients. The median PACES score was 46.5 in the EA (male 48.5, female 46, p=0.37) and 44 in the control group (p=0.44). There was a statistically significant association between symptoms during exercise (n= 9, mostly respiratory, n=8) and both, PSK (p=0.01) and PACES score (p=0.01).

Conclusion

Overall, EA patients had similar scores for physical self-concept positivity and fun participating in physical activity compared to healthy peers. However, there was an association between symptoms during exercise and both scores. Better respiratory symptom control might be key to improve endurance, athleticism and enjoyment in affected subjects and vice versa.

TT König*, L Frankenbach**, A Holler***, J Brendel*, C Oetzmann von Sochaczewski****, L Wessel*****, A Widenmann******, OJ Muensterer***, C Niessner*******
*Department of Pediatric Surgery, Hanover Medical School, Germany
**Department of Pediatric Surgery, University Medical Center Mainz, Germany
***Department of Pediatric Surgery, Dr. von Hauner Children´s Hospital, LMU Hospital Munich
****Department of Surgery, Division of Pediatric Surgery, University Hospital Bonn, Germany
*****Department of Pediatric Surgery, University Hospital Mannheim, Germany
******KEKS e.V., Stuttgart
*******Institute of Sports and Sports Science (IfSS), Karlsruhe Institute of Technology, Germany

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